Tuesday, February 26, 2008

GvHD Update

The GvHD on the feet and the hands have cleared up quite a bit, but not gone by a long shot, especially on the palms of my hands. My big problem now, though, is GvHD in the mouth, yep, the mouth. So I'm on soft food for now and a steriod mouth wash. The mouth problem set in over the weekend. But, it''s a little better today.

Today was the last of the four days of dexamethasone, but Hosing wants me to start tomorrow on 32 mg of Medrol. I'll do that for two or three days and taper down to 16 mg for a few days and then down to 8 mg and maintain until I see her again the week of the 10th.

So, that's the plan. Oral and topical steroids for awhile and see what happens. Call Dr. Hosing and let her know how it goes. If the GvHD gets worse we'll have to go up on the tacrolimus and maybe the Medrol. I want to keep the oral steroids down to a minimum, although they also help keep the lymph nodes down temporarily. The point is to go into the Sunesis study in pretty good shape with a low tumor load. Ahh, the process.

3 Comments:

At 12:42 PM, Anonymous Anonymous said...

Max, we pray you'll be in good shape to go into the Sunesis Study. God bless each step of the way. H & A.

 
At 10:37 AM, Anonymous Anonymous said...

I hope the Medrol helps lessen the GvHD also.Keep on top of as best you can.All the best.
Tyler

 
At 9:13 PM, Anonymous Anonymous said...

We're following your progress and cheering for you. Hang in there. You are in our prayers. Marrow Mania is coming. We have a training session for our recruiters next Thursday night, we have our neon pink badges, and we may have T Shirts made up for the Great Day of Service, where we hope to raise awareness even more.
John & Lynda

 

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