The 5th Infusion Went Okay

It was the usual infusion. Late start with a late ending around 1:00 am. No wonder I'm always so tired after these infusions.

We all think that this dose of SNS032 is not enough. It has slowed the progress of the disease dramatically, but hasn't halted it completely.

Interestingly though, they have opened a 5th cohort group at an even higher dose. Two men got their first dose at this higher level last week. Initial indications are there was about an 80% reduction in their nodes within 48 hours. Now that was hot off the press late last week so the data hadn't been fully digested. They will get their 2nd infusions this coming week. So until they get a few infusions and the nodes go completely away it pays to be cautious.

I'll continue to get the dose I'm on for now since it is doing me some good. Then if the results of the 5th cohort do indeed prove out, then I've got to get on the higher dosage somehow. That is not necessarily easy since this is a scientific experiment that has to be conducted as such. Moving people from one cohort to another is generally not allowed. Remember when you participate in a study like this one you are the equivalent of a lab rat - somewhat expendable.

I'll continue for the next few weeks at my dosage, see how the next cohort responds, and then see what we can do after that.

So life is on hold once again. The roller coaster goes up and the roller coaster goes down. You have to learn to deal with that, but it's not very easy.