Started the 2nd Cycle of 032

I haven't posted in a while. I've just not felt like it since John Slatin passed away. I've got his blog bookmarked in a folder next to mine. But life goes on, so here we go.

I received the first of the three infusions that will constitute cycle 2 last Thursday. And again it really made me fatigued. I slept all day Saturday after we got back. I felt better yesterday and a little better still today. I don't think the fatigue has a thing to do with coming off the steroid, Medrol.

We had a difficult trip. We missed the plane going to Houston because we couldn't find a parking place. So for $100 Delta got us on the next flight. Then for the return flight Delta called Friday morning and told us our flight Friday evening had been canceled. Heh, heh, heh. I got my $100 back in that exchange. Fair dinkum as the Aussies say.

We stayed Friday night at Kenny and Annette's and got to play a little bridge. Kenny took us to the airport Saturday morning. We usually fly in and out of Hobby, which is closer to the Medical Center, instead of Intercontinental, aka Bush, but Kenny lives near Bush so we flew out of there this time. I've been stuck due to weather too many times at Bush to risk flying out of there much anymore. But at 7:15 am, the chances of bad thunderstorms are pretty low. Hobby is a much smaller airport and doesn't get backed up like Bush does.

Atlanta could sure benefit from having two airports like Houston.

As far as the Sunesis drug, I think we are all disappointed in it. I've got new nodes that have popped up in spite of taking the drug. They are not proliferating rapidly but they shouldn't be popping up at all. So I think after this cycle, Keating will try something else. He told me that they would keep coming up with new drugs to try faster than I can go through them. I guess that's good news, but I'm not sure. I'm definitely a true guinea pig at this point. I was the first human to receive the Sunesis 032 drug at this dosage.

I'm afraid he will run me through another round of Hyper CVAD, probably part B, before starting another drug. That's the regimen that really took it out of me last summer. It's really hard on the red count. They will probably want to get rid of the nodes before they start the next experiment, which the Hyper CVAD regimen is very good at doing temporarily.

My eyes seem to be getting better, but they still require drops several times a day. I have a pair of prescription sunglasses, too. Those are actually pretty nice. I went with the progressive lenses this time. Should've done that instead of bifocals last time. I miss my contacts, but those days are probably gone.

That's all for now. I go get more 032 this week.